Jacobsens Syndrome (JS) is a rare genetic condition which affects 1 in 100,000 births.
However, no condition is rare when it affects someone you love.JS Children are very capable little people who bring much joy and fulfillment to their families, despite the trauma of early diagnosis and some of the health issues it can bring.
Because the syndrome is so rare, with barely 200 reported cases in the world, little edifying information is available. This website has been created to provide comfort to newly diagnosed families, and a place to find sensible information on the subject.
JS children are fabulous.This is their place, where families can rejoice in their uniqueness and turn to one another for support and information.
This website is new and likely to change over the weeks and months to come as it is tailored to the needs and expectations of JS families.We look forward to receiving your feedback soon. Make sure you stop in and sign our guestbook or join our mailing list for updates.
Thanks for the wonderful comments...
Thank you so much for leaving a message on my blog. We have been researching Jacobsen's a lot since we found out our new child has this condition. Your site is wonderful. It is by far the easiest to understand and is very informative. I was planning on making contact once our baby is born - which is very soon. The doctors did an Amniocentesis to try to find out why she has the problems she does and thats how we discovered Jacobsen's. Your site has given me hope and courage - and for that i thank you. I will try to keep my blog updated, but i am told she will be in the hospital for awhile and so far they think she will need 2 surgeries. Thank you again, Terah
Purchase our Awareness Bracelets for $2 each. Contact me for details.
Jacobsen's Syndrome Map Come and join our map of JS Kids. We would love to see where you are located.
Donations should be made out to UC Regents and mailed to Dr. Grossfeldat 3020 Children's Way/MC 5004, San Diego, CA 92123.
